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  <title>DSpace Community:</title>
  <link rel="alternate" href="https://hdl.handle.net/20.500.14356/16" />
  <subtitle />
  <id>https://hdl.handle.net/20.500.14356/16</id>
  <updated>2026-04-02T05:11:45Z</updated>
  <dc:date>2026-04-02T05:11:45Z</dc:date>
  <entry>
    <title>National Guideline for Sickle Cell Disease and Thalassemia Management</title>
    <link rel="alternate" href="https://hdl.handle.net/20.500.14356/2471" />
    <author>
      <name>Rayamajhi, Ajit</name>
    </author>
    <author>
      <name>Jha, Runa</name>
    </author>
    <author>
      <name>Poudyal, Bishesh Sharma</name>
    </author>
    <author>
      <name>Pandey, Rajan</name>
    </author>
    <author>
      <name>Tuladhar, Sampurna</name>
    </author>
    <id>https://hdl.handle.net/20.500.14356/2471</id>
    <updated>2024-06-03T08:45:11Z</updated>
    <published>2017-04-01T00:00:00Z</published>
    <summary type="text">Title: National Guideline for Sickle Cell Disease and Thalassemia Management
Authors: Rayamajhi, Ajit; Jha, Runa; Poudyal, Bishesh Sharma; Pandey, Rajan; Tuladhar, Sampurna
Abstract: Glossary of Terms and Definitions&#xD;
HbSS: People who have this form of SCD inherit two sickle cell genes (“S”), one from each&#xD;
parent. This is commonly called sickle cell anemia and is usually the most severe form of the&#xD;
disease.&#xD;
HbSC: People who have this form of SCD inherit a sickle cell gene (“S”) from one parent&#xD;
and from the other parent a gene for an abnormal hemoglobin called “C”. Hemoglobin is a&#xD;
protein that allows red blood cells to carry oxygen to all parts of the body. This is usually a&#xD;
milder form of SCD.&#xD;
HbS beta thalassemia: People who have this form of SCD inherit one sickle cell gene (“S”)&#xD;
from one parent and one gene for beta thalassemia, another type of anemia, from the other&#xD;
parent. There are two types of beta thalassemia: “0” and “+”. Those with HbS beta 0-&#xD;
thalassemia usually have a severe form of SCD. People with HbS beta +-thalassemia tend to&#xD;
have a milder form of SCD.&#xD;
HbSD, HbSE, and HbSO (raretypes): People who have these forms of SCD inherit one&#xD;
sickle cell gene (“S”) and one gene from an abnormal type of hemoglobin (“D”, “E”, or “O”).&#xD;
Hemoglobin is a protein that allows red blood cells to carry oxygen to all parts of the body.&#xD;
The severity of these rarer types of SCD varies.&#xD;
Sickle Cell Trait (SCT),HbAS: People who have SCT inherit one sickle cell gene (“S”) from&#xD;
one parent and one normal gene (“A”) from the other parent. This is called sickle cell trait&#xD;
(SCT). People with SCT usually do not have any of the signs of the disease and live a normal&#xD;
life, but they can pass the trait on to their children. Additionally, there are a few, uncommon&#xD;
health problems that may potentially be related to sickle cell trait.
Description: Guideline</summary>
    <dc:date>2017-04-01T00:00:00Z</dc:date>
  </entry>
  <entry>
    <title>National guideline for strengthening evidence  generation on COVID-19</title>
    <link rel="alternate" href="https://hdl.handle.net/20.500.14356/855" />
    <author>
      <name>Nepal Health Research Council (NHRC)</name>
    </author>
    <id>https://hdl.handle.net/20.500.14356/855</id>
    <updated>2023-10-31T09:20:17Z</updated>
    <published>2020-06-01T00:00:00Z</published>
    <summary type="text">Title: National guideline for strengthening evidence  generation on COVID-19
Authors: Nepal Health Research Council (NHRC)
Abstract: On 30th January, WHO declared the outbreak a Public Health Emergency of International Concern, due to COVID-19, initial infections detected in Wuhan in China On 11th March2020, WHO declared the COVID-19 outbreak as a “pandemic". As of 24th May 2020, around 5,429,185 diagnosed cases of COVID-19 with 344,444 deaths and 2,259,877 recoveries have been reported severely affecting United States of America (USA), Brazil, Russia, Spain and United Kingdom with few thousand cases and few deaths in other countries. In Nepal, the first case was reported on 23rd January 2020. The cases of COVID-19 have increased logarithmically in the last three weeks, with 1572 cases, 220 recoveries and eight deaths as of 31st May 2020.</summary>
    <dc:date>2020-06-01T00:00:00Z</dc:date>
  </entry>
  <entry>
    <title>NHRC CPD Guidelines for Providing Credit Hours to Participants of Research Trainings and conferences</title>
    <link rel="alternate" href="https://hdl.handle.net/20.500.14356/854" />
    <author>
      <name>Nepal Health Research Council (NHRC)</name>
    </author>
    <id>https://hdl.handle.net/20.500.14356/854</id>
    <updated>2023-10-31T09:20:55Z</updated>
    <published>2017-11-15T00:00:00Z</published>
    <summary type="text">Title: NHRC CPD Guidelines for Providing Credit Hours to Participants of Research Trainings and conferences
Authors: Nepal Health Research Council (NHRC)
Abstract: This guideline is applicable for providing credit hours for health professionals attending research trainings and participating in health research related conferences,, summits, workshops, and seminars.</summary>
    <dc:date>2017-11-15T00:00:00Z</dc:date>
  </entry>
  <entry>
    <title>National ethical guidelines for health research in Nepal 2022</title>
    <link rel="alternate" href="https://hdl.handle.net/20.500.14356/851" />
    <author>
      <name>Nepal Health Research Council</name>
    </author>
    <id>https://hdl.handle.net/20.500.14356/851</id>
    <updated>2023-05-31T07:17:26Z</updated>
    <published>2022-01-01T00:00:00Z</published>
    <summary type="text">Title: National ethical guidelines for health research in Nepal 2022
Authors: Nepal Health Research Council
Abstract: Foreword&#xD;
Message from the NHRC&#xD;
It is indeed a great pleasure and privilege for NHRC to be able to revise a document entitled 'National Ethical Guidelines for Health Research in Nepal.' NHRC is currently exploring new ideas to overcome the challenges confronting health research. We hope this guideline builds on these very initiatives. NHRC has always been at the forefront of setting standards for ethics in health research. The council published the Ethical Guidelines in 2001, which underwent further revisions in 2011, 2019, and 2022.&#xD;
National Ethical Guidelines for Health Research in Nepal 2022 is an outcome of in-depth discussions and debates with the experts, involving diverse stakeholders, NHRC Executive Committee, Ethical Review Board (ERB) Chairperson, former chairperson, and ERB members. 'This revised edition of the guideline has addressed many emerging ethical issues, keeping in view the social, economic, cultural, legal, and religious aspects of Nepal, the revised version also aims at sensitizing the government authority, health care institutions, policymakers, planners, research institutions and social scientists of Nepal on ethical obligations and best practices. We believe NHRC's revised ethical guidelines will be acknowledged and used as a reference by the researchers in Nepal and beyond.&#xD;
With the concerted efforts and collaboration of Government, private, public, and other relevant organizations, we believe that our goal of preparing National Ethical Guidelines will ultimately result in the development of sound ethical practices in Nepal. We expect that the researchers will be able to enhance clarity about ERB of NHRC requirements, understand clarity about ERB of NHRC requirements, understand the standard templates, checklists for submission, and monitoring compliance needs, among others. We are confident that the government, health care institutions, and individuals will contribute to the guideline's success.&#xD;
We would like to express our sincere gratitude to the NHRC Executive Committee members, especially to Prof. Dr. Mohan Raj Sharma, Prof. Dr. Prakash Ghimire former ERB Chairperson (2018-2021), ERB Members, and the ERB secretariat. In addition, we would like to express gratefulness to everyone who has kindly contributed to the development and completion of the National Ethical Guidelines for Health Research in Nepal 2022.&#xD;
We would also like to thank USAID's Suaahara II Program for helping us edit the guideline.</summary>
    <dc:date>2022-01-01T00:00:00Z</dc:date>
  </entry>
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